UC Diary: Update
Posted by DeadAnarchistPhil on December 4, 2010
I was going to write a Ulcerative Colitis Diary on a regular basis, but I ended up keeping a private Diary instead. Talking about the UC brought out some other feelings associated with it, feelings I didn’t want to necessarily post on a blog Network. So I never posted any and hence the absence of any UC Diary posts.
After moving to WordPress I noticed a couple of visitors here looking for UC related content, so I thought I’d start posting them again in the hope that it may help someone.
Since I posted my last UC Diary a few things have changed with the UC.
First of all, I don’t go to the toilet six times a day much anymore, instead my UC has decided to become more settled and still managed to remain unpredictable!
How so, right? Well I can not go all day then suddenly have to go straight away, could be day, could be night, could basically be any time. Once in the toilet I can be in there for over an hour or more. Getting on and off the toilet to flush, otherwise there would be some blocking (Too much info, eh? But I’m being honest here and there will be more of the same throughout). After getting on and off the toilet with ever reducing solid consistency I have residual pain, which is abdominal cramps from the straining (I don’t strain voluntarily, it just happens) and the urgency feeling that comes with the UC.
To calm the pain and cramps I usually have a hot shower, the all over heat from the shower is the only thing that can put it to sleep most of the time. I don’t use a hot water bottle as they don’t cover a wide enough area, nor do heat blankets/pads. However, if I’m unlucky I’ll have to jump back out of the shower and back on the toilet again. As I said, doesn’t always work. Those times are some of the most annoying.
Even though I may have been to the toilet the urgency remains and can still make me go to the toilet, bringing out blood and less, and less formed stools. Because of this I still don’t like to go out, I just don’t trust the UC, even if I can not go to the toilet for a day or two – it change so fast that I don’t even want to chance it. Even if I managed to make it to a toilet somewhere outside I don’t like the idea of being stuck in a public toilet for a while, with people coming in an out and no warm shower or privacy.
Food wise I’ve stopped eating Fruit, Veg and Beef. I’m not a 100% sure how many of them actively cause the UC to get worse because I don’t have a clear healthy starting point to start out on to test different foods. So I have to note when I get worse and see what foods I’d been eating that could cause the UC to get worse.
I ate Beef last week, just to check it out, and the weekend just gone and so f ar this week it’s made me feel UC ill again. I’ll explain in another UC blog what ‘UC ill’ is. I’m more prone to go to the toilet, uncomfortable pain in my left side, feeling sick and going off food. So it’s possible Beef does make my UC worse.
Another thing, though I don’t know if it’s connected or not, is me sleeping. It’s started to change again. When I go to bed early, even when tired, I’m restless and keep waking up not able to get comfortable. I lost count of how many times I woke up last night, it was just so annoying. It just pisses me off and adds to the tiredness I usually feel during the day.
That’s all I’ll be back with more soon, and as always, don’t be scared, leave a comment if you have UC.