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Ulcerative Colitis Diary: Week Nine On Prednisolone

Posted by DeadAnarchistPhil on March 22, 2011

Green = How well I feel 1 being the best and 10 being the worse.

Blue = Depression. Again, on a scale as above.

Treatment for: Ulcerative Colitis.

Medication, Direction and Course as follows:

Prednisolone : Take four 5mg Tablets daily for four weeks [Now six weeks], then cut down by one tablet a week each week over the next four [Now three] weeks.

Day 57 Tue 15th March 2011: Woke up at 11am, not been to the toilet yet and no twinges from the beef I ate yesterday. But still, I’m not going to eat any of the foods that may cause a  flare-up untill I’m fully off the Prednisolone.

Went to the toilet, normal! Down to one tab a day from today, wish I remembered that this morning when I took two! Oh well. (2/10) (6/10)

Day 58 Wed 16th March 2011: Got up late (10:30am), didn’t sleep well. Went to the toilet and it’s still normal. No cramps or pains. Did some cleaning and work in the Bathroom, felt OK, besides the fumes from the bleach and the stretching!

Went to bed at 2am, couldn’t sleep or get comfortable. Got up and did some writing then went back to bed at 5am. (2/10) (5/10)

Day 59 Thu 17th March 2011: Got up late, about 12:10pm, I didn’t sleep well again! I don’t think the bleach fumes helped, it’s given me a bad chest! I’ll buy a mask for when I start painting! (2/10) (5/10)

Day 60 Fri 18th March 2011: Didn’t go to the toilet yesterday, so I’ll go some time today. So far, no bloating or cramps.

Went to the toilet, it was normal. It’s so good to feel well again, I mean, I’m not perfect but I feel a lot better. I still feel tired in the day like I used to, but it’s better. Dare I say it… I feel ‘Normal’! (2/10) (4/10)

Day 61 Sat 19th March 2011: Woke up late, about 11:15am, with a bad back! It must’ve been the cleaning and stretching to get the old paint off the ceiling in the toilet on Wed! I still have it now at 5:20pm.

Went to the toilet, it was normal. But I was tired before that, I fell asleep for an hour and half. Though the UC is sort of at bay, I still have the tiredness that comes with it. (2/10) (4/10)

Day 62 Sun 20th March 2011: My back is a little bit better this morning, at least I’m not walking around like an old man!

Went to the toilet, ’twas normal!

I’m feeling a little drop in mood today.

HOLY FUCKING SHIT! I went to bed early, and my back suddenly got extremely worse when I got up again to get comfortable! It was as painful as 2009 when I last had it this bad! Because of this I stayed up really late and my sleeping pattern is well and truly out of the window! Feeling pretty shitty right now. The pain killers (Co-dydramol) don’t even work! (2/10) (5/10)

Day 63 Mon 21st March 2011: Woke up at 12:15pm! I wasn’t up long before I had one of my downturns in mood. When I get them I just don’t want to be seen by, spoken to, looked at  or be near anyone. I also don’t feel like doing anything either. So I went to my room and fell asleep for a few hours, I felt a little better afterwards, though I’m still feeling it.

Went to the toilet, was normal! Just had a shower and preparing for a boring night in front of the TV or messing on about on the PC. (2/10) (6/10)

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4 Responses to “Ulcerative Colitis Diary: Week Nine On Prednisolone”

  1. prenin said

    Sounds really good Phil – sorry about your back, but may I suggest a talk to the doctor because you’ve had this a while now???

    You’re doing so well my friend I’m REALLY pleased for you!!! 🙂

    God Bless!!!

    Prenin.

    • I’ve been to the Doctors many times, they gave stuff that didn’t work and then sent me to specialists and to a pain center. Baicially, my core and back muscles are really weak. It’s because I’ve done no exercise and not done the specific ones to imrpove them because I haven’t felt up to it. So basically it’s 12 months of inactivity and then four hours of activity which leads to a baaaaaad back! But not to worry, I’m going to do the back exercises to stregnthen them, I need to do that anyway, to get my back used to it before I start doing proper exercise.

      Cheers man, I feel OK-ish health wise, we’ll see how things go! Thanks for the support! 🙂

  2. i finally got here phil! go ME! lol
    you have gone for a whole week with no blood? that is a RESULT!!! I sincerely hope that you continue like this!
    I have mysteriously bled on 2 occasions since my colonoscopy which was the 21st February. But 2 occasions only. so I dunno? I’m still very worried ( THRILLED that my colon is normal) but that blood is happening for a reason? :s
    anyhooo i’m now on WordPress, my ‘muse’ is still awol, but i’m praying for it to return to me -very soon-specially as I now have a new home for my blogs. take care phil, and I hope you continue to have no bleeding.. good luck with that!!!!
    mags x

    • Hey Mags! 🙂

      I know you transfered, I went to your site via MSN and saved your site. I never got around to your place because I put you in the WordPress folder in favourites and I forgot about you! Sorry Mags! 😦

      But anyway, yes… GO MAGGY MOO! :O) I told you it wasn’t that hard didn’t I? Don’t worry about having inspiration for your site, it’ll come to you eventually. In my opinion I think Facebook has a lot to answer for in that department, I think it distracts a lot of people from thinking and being creative.

      I’ve gone for nearly three weeks without blood, I think! Things are nearly normal, so you can’t get better than that. I’m on one prednisolone (steroid) a day now, as a maintanence dose untill I see the specialists in April. We’ll see what happens and I’ll keep you updated.

      As for you, well… they should investigate your problem sooner than later! Yes, you may not have UC and looked like you had a clear colon when they did the colonoscopy, but there’s obviously something wrong there! You should keep a diary, not on-line if you don’t want, to show the Doc when you go see him/her. Keep a list of foods you’ve eaten too, and see if any could be the cause of the bleeding. You need to be maticulous with it so you can narrow things down.

      Thank you for your support Mags! I’ll keep you updated and talk soon! :O) xxxx

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