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Ulcerative Colitis Diary: Week Thirteen on Prednisolone (EPIC WINNING)

Posted by DeadAnarchistPhil on April 18, 2011

Green = How well I feel 1 being the best and 10 being the worse.

Blue = Depression Caused by the UC directly. Again, on a scale as above.

Treatment for: Ulcerative Colitis.

Medication, Direction and Course as follows:

Prednisolone : Take four One 5mg Tablet(s) daily for four weeks [Now six weeks], then cut down by one tablet a week each week over the next four [Now three] weeks. Untill I see the specialists in April 2011.

Day 85 Tue 12th April: (?) (?) (?)

Day 86 Wed 13th April:Had a bad visit to the toilet, went three times, first time was normal, second was a little less formed and the third time was typical UC. Hoping this is just a blip.

My sleeping pattern is still upside down. I sleep about two or three hours then wake up around 8 or 9am, then stay awake untill 3 or 4pm and then I’m so tired I have to sleep for four or five hours then I’m awake untill f or 5am. Wonkey aint in it! (3/10) (1/10)

Day 87 Thu 14th April: Things seem to have normalised somewhat, looks like it was just a blip.

Still tired and still fucked! (2/10) (1/10)

Day 88 Fri 15th  April: Been awake since 9am, going to try and stay awake untill 10 pm or so.

Toilet visit normal. Sleeping pattern started to normalise. (1/10) (1/10)

Day 89 Sat 16th  April: Toilet visit was normal.

Sleeping pattern staying stable. (1/10) (1/10)

Day 90 Sun 17th April: Got up at 8:15am.

Toilet visit was normal.

Had a headache. Went to bed at 11:30pm.(1/10) (1/10)

Day 91 Mon 18th April: Woke up at 8:10am. Not been to the toilet yet. Visit to the UC specialist today.

Went to toilet, tis all normal.

Just got back from the seeing the inflammatory Bowl Disease nurse (IBD Nurse), um, I wont be on Prednisolone anymore. I have to ween myself off them over this week and then stop while increasing my Mesalazine Tablets from 6 tabs a day to 8 tabs a day to off-set against the loss of the prednisolone – just incase the UC trys to come back.

She said although things have gone back to normal on the surface of the colon, it doesn’t mean the underside hasn’t. There’s three layers of the colon, and only my top level is healed. So I have to wait for 6 months or so before I start to introduce the foods that could cause the UC. She also told me that I would be able to eat the trigger foods once fully healed, that’s a relief! So yeh, I have about five months left before full recovery because I only started to recover a month or so ago.

If I do have another flare I wont be using Prednisolone anymore, I will be put on another drug that has marginally fewer side-effects and one possible big one! It’s called Azathioprine. If I take this medication I have a 4 in 100,000 chance of developing Lymphoma! But when you think about it, everyone has a 1 in 100,000 chance of developing Lymphoma, so the chances are pretty negligible, but still… Lymphoma??? She told me the long-term effects of Azathioprine were significantly less than those of Prednisolone. Compare them yourself and tell me what you think, what you take them?

Another thing, I sussed out why I get headaches… it’s because I’m so out of shape and over weight. They’re called “exertional Headaches” or “Exercise Induced Headaches“. Basically, it happens when a person works themselves so hard they get headaches. However, just walking, bending down, gardening or getting out of a Taxi (yes, that happened today!) and walking set it off! I got a really bad banging headache when I got back home. Then again, that comes as no surprise to me as I’m 24st!

Oh yeh, because I’m eating rubbish I have a “fatty liver”. I explained to her it’s hard work to exercise when you have trouble with really low-moods and limited diet. Anyway, I have to go for a scan on it soon.

Um, I see the UC consultant tomorrow, so another trip there! Not looking forward to it really!

So, in short… Things are good, coming off the steroids over this week (which means one last UC Diary based on Prednisolone, but I’ll still do a UC Diary once a week or so), weight is bad and liver is a little dodgey, but over all things are sort of looking up on the UC front! (1/10) (1/10)

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10 Responses to “Ulcerative Colitis Diary: Week Thirteen on Prednisolone (EPIC WINNING)”

  1. Great news….so many ones and twos…..I was waiting for the punchline!!

    It’s great news and with a little patience and a few lifestyle changes, things can continue to get better. You need to start working on the weight though because you don’t want to undo all the good stuff here by making yourself ill with your weight. Hopefully there’s an answer for you somewhere.

    Take care and enjoy the success
    Pete

    • There is no punchline, unless I believed in God, then it would be a joke with me taking all these meds that produce side-effects that can be worse than the illness itself!

      Life style changes would be even harder, especialy as I still can’t get out much. I’m hoping there’s an answer too, though I’m not so optomistic about it.

      Cheers mate! I’ll keep you updated with a UC blog when it’s needed. :O)

  2. Androgoth said

    I am just popping in again, soooo how are you today DeadAnarchistPhil? Yes those orgies can be very tiresome you know but thrilling nonetheless, or so I have been told? lol Of course I could send over a few of the Zombie good time girls to give you the once over, or perhaps a night of erotic picnicking would suffice? Well it will be all tongues and finger painting but you’ve not seen the canvas yet so don’t knock it until you have tried it hey? lol

    I hope that the five months pass quickly for you as it must be rather daunting waiting around like that, though recovery is definitely a slow process sometimes so don’t be worrying about that, okay so I am waffling a little but I am sending you my most positive vibes just the same, so there…

    Right Phil get ready for those ladies
    of the Night but be careful… THEY BITE

    Androgoth ; )

    • Hello Andro 🙂

      Um, I am OK, friend came down today, talked, laughed, got my hair cut and had some tea. Now am just chilling out! I haven’t seen any Zombies so far, so I’m assuming they never made it through the Zombie defences I have up! Zombies aint a match for landmines and tredmills don’t cah know?

      I hope the five months pass quickly too! Not so much daunting as annoying! I’m a very impatient person! But there’s not much else I can do but wait, so I’ll kill time by taking out the Zombies now attacking mah house! Some how they made it passed the tredmills, they must’ve unpluged them, crafty sods! lol

      Thanks for the words and positvity, Andro! Oh, and I aint worried about ’em biting, I bite back! 😉

  3. jennyozzy said

    sounds like a bad illness phil hope it all gets better for you im switching tv off on that day i think my ozzy cds will get the hammer talk about shoving the royals down our throats its a royal hoover at comet buy a royal wedding lawn mower at bq its sickening id love to buy a royal bin bag to chuck all the royal junk in it lol theres even a royal granny shelf in asda where they all meet to buy the mugs and t towels if i get like that i want shooting have a good saturday phil rant over lol xxjen

    • Hello Jen! 🙂

      Yeh, it can be a bad illness at times, but at the moment I feel OK because of the medication I’m taking. However, I will stop taking the fully this coming Tuesday, it’s at this time we can see if I can carry on without the help of steroids, sort of like walking without crutches.

      Aye! Bring out the Ozzy CDs, not that fond of his solo work, but still, blasting some Ozzy on the Royal wedding is better than having to hear the damn TV or people outside celebrating. They have a shelf dedicated to the Royals in ASDA? If that’s the case they must have some in my local Tescos! *Note to self, stay away from Tescos unless I want to piss myself laughing at the cheap crap on display*

      I promise you, Jen, if you start acting like that I will sort you out, because it’s obvious Andro will bottle it! haha

      Have a good Staurday Night, Jen! 🙂

  4. Androgoth said

    I am just hopping by to say hi Phil…
    Hope you are feeling okay today and not
    planning any orgies for the coming weekend
    if you will pardon the pun? lol Well there
    is the Royal Wedding to miss out on so you
    need something to keep you occupied for a
    few hours and what better than… Well…
    Just enjoy yourself okay? Right it’s time
    to return to My Gothic Realm… Be GOOD

    Androgoth ; )

    • Hellooooooooo Androooooooooo,

      Orgies? Only orgies I’ve got instore is with books, and that’s the revision and study kind, not the sexual kind! Makes me think, is there a fetish where people have sex with books? Strangeeee people out derrr.

      Fuck the Royle wedding, while some people in my house will be watching and doing the: “Oh! He don’t hafl look like his Mam! She would be really proud of him!” shit, I’ll be in my room on the PC or studying, so I got all bases covered, though a Orgy would be nice, only involving me and some ladies!

      Thanks for dropping by to see how things are, they’re OK so far, thanks! I hope things are OK with you and Jen aswell! 🙂

      Be good? Nah, tis impossible! haha 😉

  5. prenin said

    Hi Phil! 🙂

    Brilliant news my friend – hope that all works out!!! 🙂

    Have a great week and be good! LoL!

    God Bless!

    Prenin.

    • Hey Ian,

      I’m hoping it works out too! If it doesn’t it’s on to those new meds and I don’t really want to try them.

      Hope the week’s been good for you so far and “be good”? That would be no fun now would it? 😉

      Latersssssssssssssss 🙂

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