Ulcerative Colitis Diary: Week Thirteen on Prednisolone (EPIC WINNING)
Posted by DeadAnarchistPhil on April 18, 2011
Green = How well I feel 1 being the best and 10 being the worse.
Blue = Depression Caused by the UC directly. Again, on a scale as above.
Treatment for: Ulcerative Colitis.
Medication, Direction and Course as follows:
Prednisolone : Take
four One 5mg Tablet( s) daily for four weeks [Now six weeks], then cut down by one tablet a week each week over the next four [Now three] weeks. Untill I see the specialists in April 2011.
Day 85 Tue 12th April: (?) (?) (?)
Day 86 Wed 13th April:Had a bad visit to the toilet, went three times, first time was normal, second was a little less formed and the third time was typical UC. Hoping this is just a blip.
My sleeping pattern is still upside down. I sleep about two or three hours then wake up around 8 or 9am, then stay awake untill 3 or 4pm and then I’m so tired I have to sleep for four or five hours then I’m awake untill f or 5am. Wonkey aint in it! (3/10) (1/10)
Day 87 Thu 14th April: Things seem to have normalised somewhat, looks like it was just a blip.
Still tired and still fucked! (2/10) (1/10)
Day 88 Fri 15th April: Been awake since 9am, going to try and stay awake untill 10 pm or so.
Toilet visit normal. Sleeping pattern started to normalise. (1/10) (1/10)
Day 89 Sat 16th April: Toilet visit was normal.
Sleeping pattern staying stable. (1/10) (1/10)
Day 90 Sun 17th April: Got up at 8:15am.
Toilet visit was normal.
Had a headache. Went to bed at 11:30pm.(1/10) (1/10)
Day 91 Mon 18th April: Woke up at 8:10am. Not been to the toilet yet. Visit to the UC specialist today.
Went to toilet, tis all normal.
Just got back from the seeing the inflammatory Bowl Disease nurse (IBD Nurse), um, I wont be on Prednisolone anymore. I have to ween myself off them over this week and then stop while increasing my Mesalazine Tablets from 6 tabs a day to 8 tabs a day to off-set against the loss of the prednisolone – just incase the UC trys to come back.
She said although things have gone back to normal on the surface of the colon, it doesn’t mean the underside hasn’t. There’s three layers of the colon, and only my top level is healed. So I have to wait for 6 months or so before I start to introduce the foods that could cause the UC. She also told me that I would be able to eat the trigger foods once fully healed, that’s a relief! So yeh, I have about five months left before full recovery because I only started to recover a month or so ago.
If I do have another flare I wont be using Prednisolone anymore, I will be put on another drug that has marginally fewer side-effects and one possible big one! It’s called Azathioprine. If I take this medication I have a 4 in 100,000 chance of developing Lymphoma! But when you think about it, everyone has a 1 in 100,000 chance of developing Lymphoma, so the chances are pretty negligible, but still… Lymphoma??? She told me the long-term effects of Azathioprine were significantly less than those of Prednisolone. Compare them yourself and tell me what you think, what you take them?
Another thing, I sussed out why I get headaches… it’s because I’m so out of shape and over weight. They’re called “exertional Headaches” or “Exercise Induced Headaches“. Basically, it happens when a person works themselves so hard they get headaches. However, just walking, bending down, gardening or getting out of a Taxi (yes, that happened today!) and walking set it off! I got a really bad banging headache when I got back home. Then again, that comes as no surprise to me as I’m 24st!
Oh yeh, because I’m eating rubbish I have a “fatty liver”. I explained to her it’s hard work to exercise when you have trouble with really low-moods and limited diet. Anyway, I have to go for a scan on it soon.
Um, I see the UC consultant tomorrow, so another trip there! Not looking forward to it really!
So, in short… Things are good, coming off the steroids over this week (which means one last UC Diary based on Prednisolone, but I’ll still do a UC Diary once a week or so), weight is bad and liver is a little dodgey, but over all things are sort of looking up on the UC front! (1/10) (1/10)