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Archive for the ‘Ulcerative Colitis Diary’ Category

A Pain in the back, a pain in the head and a pain in the arse (basically an update)

Posted by DeadAnarchistPhil on September 15, 2013

Any regular readers or old-time friends who read my blogs will know that I was almost completely absent from blogging last year (2012), and most of this year (2013). For me this is unusual, I can go missing from blogging for weeks or months on end and then come back with something.

However, this time I didn’t. The reason for this? I was preoccupied with my University degree and generally being  and trying to be healthy. For those people who know me they will know how rare this is as I have several illnesses that impact my ability to do many things and go places.

One of the worse of these was Ulcerative Colitis. I was taking Prednisolone steroids to control this in conjunction with Mesalazine. But then I had to switch medication as the medical steroids I was on had given me steroid-induced diabetes (Type 2 Diabetes) and weren’t always delivering consistent results. Since I started taking Azathioprine medication to control the Ulcerative Colitis in late 2011 I slowly got better and it gave me my life back. Now when I say ‘better’ I mean things were good and well controlled but I still had and still do have issues with the UC. In fact after being diagnosed with the diabetes it made me more depressed and this stalled the UC recovery into to early 2012.

As the UC was beginning to get better I was able to be more physically active, something I’ve not been able to do properly for a while. I think I was helped along with this when I had a bad bout of OCD, to stop myself from ruminating and worrying I threw myself in to my exercise regime, which is something I badly needed to do as I was 25st (350lbs/158kgs) and had the diabetes to worry about too. I’d gained so much weight because of years of the UC affecting my diet, so many foods I ate, that were good for me, triggered a reaction with the UC. So I ended up eating junk food, which didn’t apparently do anything. Combine that with lack of exercise because that set the UC off too and being housebound and you’ve got yourself the right combination for more health troubles.

I started off on the treadmill just walking for half an hour five days a week, it was gentle and not too much hassle. I did however get blisters on both my feet and on my toes because my feet weren’t used to wearing shoes for so long and in such conditions. These were huge blisters too! But I couldn’t take time out, it wasn’t an option anymore, so I just looked after my feet and bandaged them when I went on the treadmill.

Gradually my feet got used to it and I started to walk for longer and then jog. I made a game of it, I’d try to jog for that bit longer each time I did the ‘run’ in the run and walk system that I used on there. When I say ‘run’, it was more of a jog for me as running put too much pressure on my back and knees, not to mention the treadmill! I began to develop great endurance and at my best I could jog non-stop for an hour and half. I couldn’t go no more than that because if I did my back would completely give in, I was getting back pain just doing the run and walk system for an hour.

During the times I was doing the treadmill I was also lifting weights too, but not too many and not too heavy. I’d set off my back pain doing weights on and off since the age of 16.

All this paid off as I went from being 25st (350lbs/158gs) to just under 18st (252lbs/114kgs) from November 2011 to August 2012 (though I only started my proper exercise regime in April 2012). I felt great! I was feeling physically and mentally well, the first time in a long while. Things were going so good I moved out of the family home and was even contemplating getting a part-time job, because despite what some people may say the UK benefit system isn’t that great and I’d rather make my own way in the world anyway.

Then came August 2012, the back issues I’d had on and of since I was 16, the ones that made me unable to walk for days and not able to walk properly for weeks, came back! The Doctor who came out to see me diagnosed Sciatica and my GP said the same thing. They gave me pain killers and told me to rest, do some core exercises to help strengthen my back then exercise as usual when back to normal, and if the pain comes back then take some pain killers and carry on. The pain has never gone away and I could not possibly exercise with those pain killers as the amount I’d need to dull the pain sufficiently leaves me really tired and feeling drunk. And lifting weights and jogging when you’re drunk aint such a good idea.

I had the issue investigated this year with X-rays and a CT scan, one of the Doctors said I may have Sacroillitis, before the X-rays and CT Scan was done, though I couldn’t see how that could be as Sacroillitis is a problem caused by inflammation caused by inflammatory bowel disease, I know I have that but I’ve only had that since 2005 and I’ve had these back issues since 1999! So that was dismissed by me and my GP who thought it unlikely too. The results from the X-ray and CT Scan came back and there’s a problem there, they can’t say exactly what it is, but it’s there and there’s nothing they can do. They advised me not to jog, run, lift weights or do any exercise that puts pressure on my back. This only leaves me swimming, which I can’t afford as a pass at the local gym is £22 a month which I can’t afford, the only other pool near by is £29, so both are out of the question.

Walking is supposed to be good but I can’t walk or stand for more than half an hour anymore without getting a tightening in my lower back, like someone’s stuck a cork-screw in there and is turning it. If try to carry on walking the pain gets worse and spreads down my groin and legs. Despite this I’ve been trying on and off since August 2012 to restart my regime despite what the Doctors and specialists say but I am just incapable of keeping to it anymore, there’s always pain and a lot of the time I’m physically incapable of completing the movements.

Without the exercise to release the endorphins (and I really need those guys) I need to help suppress my appetite and generally feel good… I’m slowly putting it back on. So I’ll be starting another diet tomorrow, only 1500 calories, to try drop my weight because it just isn’t healthy at all for me, and I don’t enjoy feeling unhealthy. The most annoying thing is I want to be physically active, but my body just wont allow it.

Hence why I wasn’t around much last year or most of this year, because I’ve been trying to stay physically and mentally healthy.

Another reason why I haven’t been on much is my University degree. Despite the obvious study, reasearch and writing of notes and essays and the like, there was something else about my course that stopped me from coming on.

It’s not that I can’t do or understand the work, I mean I passed the level 2 Philosophy module in my Politics, Philosophy and Economics degree and 2 others, the issue is that I’m learning so much and it makes me even more unsure of my own opinions. What I mean by this is I read a piece of work then think I’ve got it nailed and seen from all angles, then comes along another way to look at a particular issue from another angle I think to myself, “How could I miss that?”. It’s made me quite unsure of many opinions I hold.

I mean, if I’m wrong about that I could be wrong about many other things. And in fact, so can many other people. This is nothing I didn’t already know but doing this whole course brings it to the forefront because I’m forced to think about these things a lot.

This may sound stupid and cliché, but the more I learn the less I feel I really know.

Anyway, it’s this thinking, alongside my obsessive over thinking I do anyway, that tires me out mentally. Combined with illness and medication side-effects I can barely think straight most days, which makes it extra challenging to do the course and put everything I have into it. This is another reason I couldn’t come on, I was just too mentally tired after being consumed in study, reasearch and writing.

This piece is the blog I should have come back with instead of my Syria one, which is a bit of a throw back to how I used to write, my other blogs should be well thought out and researched, just like the essays I’ve had to write. And you know what, writing them can be a pain in the arse too, especially as only a few people will even read them. Which is another reason why I wasn’t posting much, because if I do one of my long blogs again many normal people don’t bother much. There’s also the fact my blogging at the world also wont change much.

Oh, I didn’t mention my headaches, but they impact my blogging too, but sod them.

My next course starts in October 2013, so expect me to go quiet a little but I will still be around commenting on blogs and such. For now I’ll leave you with Bat for Lashes, simply because it’s the song I’m currently listening to. Oh and how cute is Natasha Khan in the video?

Much love to all!

– Phil

Posted in Health and wellness, Hobbies, Ulcerative Colitis Diary | Tagged: , , , , , , , , , , , , , | 23 Comments »

Ulcerative Colitis Diary: Week Thirteen on Prednisolone (EPIC WINNING)

Posted by DeadAnarchistPhil on April 18, 2011

Green = How well I feel 1 being the best and 10 being the worse.

Blue = Depression Caused by the UC directly. Again, on a scale as above.

Treatment for: Ulcerative Colitis.

Medication, Direction and Course as follows:

Prednisolone : Take four One 5mg Tablet(s) daily for four weeks [Now six weeks], then cut down by one tablet a week each week over the next four [Now three] weeks. Untill I see the specialists in April 2011.

Day 85 Tue 12th April: (?) (?) (?)

Day 86 Wed 13th April:Had a bad visit to the toilet, went three times, first time was normal, second was a little less formed and the third time was typical UC. Hoping this is just a blip.

My sleeping pattern is still upside down. I sleep about two or three hours then wake up around 8 or 9am, then stay awake untill 3 or 4pm and then I’m so tired I have to sleep for four or five hours then I’m awake untill f or 5am. Wonkey aint in it! (3/10) (1/10)

Day 87 Thu 14th April: Things seem to have normalised somewhat, looks like it was just a blip.

Still tired and still fucked! (2/10) (1/10)

Day 88 Fri 15th  April: Been awake since 9am, going to try and stay awake untill 10 pm or so.

Toilet visit normal. Sleeping pattern started to normalise. (1/10) (1/10)

Day 89 Sat 16th  April: Toilet visit was normal.

Sleeping pattern staying stable. (1/10) (1/10)

Day 90 Sun 17th April: Got up at 8:15am.

Toilet visit was normal.

Had a headache. Went to bed at 11:30pm.(1/10) (1/10)

Day 91 Mon 18th April: Woke up at 8:10am. Not been to the toilet yet. Visit to the UC specialist today.

Went to toilet, tis all normal.

Just got back from the seeing the inflammatory Bowl Disease nurse (IBD Nurse), um, I wont be on Prednisolone anymore. I have to ween myself off them over this week and then stop while increasing my Mesalazine Tablets from 6 tabs a day to 8 tabs a day to off-set against the loss of the prednisolone – just incase the UC trys to come back.

She said although things have gone back to normal on the surface of the colon, it doesn’t mean the underside hasn’t. There’s three layers of the colon, and only my top level is healed. So I have to wait for 6 months or so before I start to introduce the foods that could cause the UC. She also told me that I would be able to eat the trigger foods once fully healed, that’s a relief! So yeh, I have about five months left before full recovery because I only started to recover a month or so ago.

If I do have another flare I wont be using Prednisolone anymore, I will be put on another drug that has marginally fewer side-effects and one possible big one! It’s called Azathioprine. If I take this medication I have a 4 in 100,000 chance of developing Lymphoma! But when you think about it, everyone has a 1 in 100,000 chance of developing Lymphoma, so the chances are pretty negligible, but still… Lymphoma??? She told me the long-term effects of Azathioprine were significantly less than those of Prednisolone. Compare them yourself and tell me what you think, what you take them?

Another thing, I sussed out why I get headaches… it’s because I’m so out of shape and over weight. They’re called “exertional Headaches” or “Exercise Induced Headaches“. Basically, it happens when a person works themselves so hard they get headaches. However, just walking, bending down, gardening or getting out of a Taxi (yes, that happened today!) and walking set it off! I got a really bad banging headache when I got back home. Then again, that comes as no surprise to me as I’m 24st!

Oh yeh, because I’m eating rubbish I have a “fatty liver”. I explained to her it’s hard work to exercise when you have trouble with really low-moods and limited diet. Anyway, I have to go for a scan on it soon.

Um, I see the UC consultant tomorrow, so another trip there! Not looking forward to it really!

So, in short… Things are good, coming off the steroids over this week (which means one last UC Diary based on Prednisolone, but I’ll still do a UC Diary once a week or so), weight is bad and liver is a little dodgey, but over all things are sort of looking up on the UC front! (1/10) (1/10)

Posted in Health and wellness, Ulcerative Colitis Diary | Tagged: , , , , , , , , , | 10 Comments »

Ulcerative Colitis Diary: Week Twelve On Prednisolone

Posted by DeadAnarchistPhil on April 13, 2011

Green = How well I feel 1 being the best and 10 being the worse.

Blue = Depression Caused by the UC directly. Again, on a scale as above.

Treatment for: Ulcerative Colitis.

Medication, Direction and Course as follows:

Prednisolone : Take four One 5mg Tablet(s) daily for four weeks [Now six weeks], then cut down by one tablet a week each week over the next four [Now three] weeks. Untill I see the specialists in April 2011.

Day 78 Tue 5th April 2011: Still have the headache from exercising on Monday, I’ve had it all night, I couldn’t sleep because of it. I slept two hours then had to get up and hold a hot-water bottle to the area. It got rid of it eventually, went to bed at 6am Wed 6th

Never went to the toilet this day. (2/10) (2/10)

Day 79Wed 6th April 2011: Didn’t have a headache when I woke up but developed it when I started cleaning up.

Did some more light exercise today, some squats and walking briskly on the treadmill, it was a little easier, though I need to improve my stamina and cardio over the next few months. If I do it slow I lower the risk of making myself ill and pulling muscles. Still feel like my back’s going to give in though.

Exercise made the headache work!

Never went to the toilet this day.(1/10) (2/10)

Day 80 Thu 7th April 2011: Wonky sleeping pattern the most annoying thing today.

Haven’t been to the toilet today.(1/10) (2/10)

Day 81 Fri 8th April 2011: Went to the toilet today, everything was normal. My sleeping pattern is still well and truly fucked. The closer I get to the course and study time the worse it gets! Which is just what I feared would happen.

I didn’t do exercise, couldn’t muster the, I can’t even think of the word!!(1/10) (1/10)

Day 82 Sat 9th April 2011: Toilet visit was normal.

My sleeping pattern being tits up is not helping me. Sleepin’ odd times does zero for motivation and developing a regime to do exercise, diet, DIY, Gardening and, in the future, study!

My pattern is so fucked up now that I’m sleeping a few hours then waking up and staying awake for six! Which is in contrast to a few days earlier when I was sleeping a lot and feeling tired all the time. Well, I still feel tired a lot, but it’s not as bad. Maybe it’s because I’m up at night with no one else about.(1/10) (1/10)

Day 83 Sun 10th April 2011: Toilet visit was normal. Motivation still low. (1/10) (1/10)

Day 84 Mon 11th April 2011: No toilet visit today. 

Did a lot of garden work, had to force myself to do it while fighting tiredness. I’d been up since 3am in the morning and didn’t get to sleep untill gone 12:30am Tuesday morning. I still didn’t have a good sleep. (1/10) (1/10)

Posted in Health and wellness, Ulcerative Colitis Diary | Tagged: , , , , , , , | 10 Comments »

Ulcerative Colitis Diary: Week Eleven On Prednisolone

Posted by DeadAnarchistPhil on April 5, 2011

Green = How well I feel 1 being the best and 10 being the worse.

Blue = Depression. Again, on a scale as above.

Treatment for: Ulcerative Colitis.

Medication, Direction and Course as follows:

Prednisolone : Take four One 5mg Tablet(s) daily for four weeks [Now six weeks], then cut down by one tablet a week each week over the next four [Now three] weeks. Untill I see the specialists in April 2011.

Day 71 Tue 29th March 2011: (Been normal today, not much to report besides a low-mood still.

Went to the toilet, was normal. I pushed it today! I had another Big Mac for my tea, seeing as no one had gone shopping again and someone was going so I had a Big Mac. We’ll see how it affects me. (2/10) (6/10)

Day 72 Wed 30th March 2011: Went to the toilet twice today, which is something I havent done very often for the last two weeks. Both times it was normal, but I two motions with the second, the second wasn’t that formed and I actually had some abdominal tenderness. Maybe eating that Big Mac was a bad idea! I hope this is just a blip.

Did some light exercise, back strengthening, press-ups, squats, punching with weights in hand, stretching and walked on the treadmill for six minutes. During it and after I felt sick! And that was only light, I also felt abdominal twinges! I hope this doesn’t happen every time! (2/10) (6/10)

Day 73 Thu 31st March 2011: Went to the toilet not long after getting up, 1pm, and it’s less formed but still in the bracket of ‘normal’. Again, hoping this is just a blip and not a result of that Big Mac I ate!

Still feel funny inside, not sure if it was the Big Mac, Exercise or low-mood! We’ll see.

Did some more exercise, but only gentle, to increase my back-strength and over all muscle-strength. Felt sick and dizzy after it. Mood still low. (2/10)(7/10)

Day 74 Fri 1st April 2011: Things have gone back to normal.

Mood still low. (2/10) (7/10)

Day 75 Sat 2nd April 2011: Went to bed at 6am this day, I had a panic attack of sorts, the first time since 2006. Luckily I can control them, I just breathed through my nose normally and tried to relax. It made me feel better but didn’t get rid of the tightness in my chest fully. But it worked to a degree because I fell asleep.

The quality of sleep itself wasn’t that good either, I kept waking up and dreamed it was the end of the world, everyone seemed to be calm about it for some reason! I woke up at 12:30pm and had something to eat while I took my tablets. Then I went back to bed and slept untill 6pm. Still felt shitty when I got up.

Went to the toilet twice! Had the urgency feeling the second time. Still OK though. (2/10) (7/10)

Day 76 Sun 3rd April 2011: Woke up late after staying up to 9am! Woke at 1am and took tabs and then went back to bed. Woke up at 8pm.

Toilet visit was normal and mood still low. (2/10) (7/10)

Day 77 Mon 4th April 2011: Went back to bed at 12am, I was so tired and just fucked off I need to get away from everyone and everything. Didn’t sleep at all, just rested for an hour or so and then got back up again.

Still feel tired and fucked off, more than I have for a while. I find it funny (I don’t actually, I find it annoying), I was planning to do my full exercises again today, and I get this wave of demotivation! A feeling of lethargy, misanthropy and a feeling of  Nihilism coupled with sadness and Nihilism. I’m sick of this mindset, OCD or whatever it is, it’s sending me mental! 

OK, just read that back, that’s enough of that! (2/10) (8/10)

Posted in Health and wellness, Ulcerative Colitis Diary | Tagged: , , , , , , , | 11 Comments »

Ulcerative Colitis Diary: Week Ten On Prednisolone

Posted by DeadAnarchistPhil on March 29, 2011

Green = How well I feel 1 being the best and 10 being the worse.

Blue = Depression. Again, on a scale as above.

Treatment for: Ulcerative Colitis.

Medication, Direction and Course as follows:

Prednisolone : Take four One 5mg Tablet(s) daily for four weeks [Now six weeks], then cut down by one tablet a week each week over the next four [Now three] weeks. Untill I see the specialists in April 2011.

Day 64 Tue 22nd March 2011:  Woke up at 8:50am after going to sleep at 4:00am. Back still sore and I feel shitty, I don’t want to do anything but sleep or stare in to space. It’s moods like this that worry me for when I start studying! I just wont be able to take anything in fully because it.

Went to sleep for a few hours because I felt tired and pissed off. Back getting better though) (2/10) (6/10)

Day 65 Wed 23rd March 2011: Went to the toilet twice, it’s all normal. Back is very much better, will start doing the back strengthening tomorrow. Mood still low-ish, but better than yesterday. (2/10) (5/10)

Day 66 Thu 24th March 2011: Didn’t sleep well last night, I lost count of how many times I woke up. I went to bed early but wound myself up when the OCD/T started. It’s going to be one of those days where I don’t want to be around anyone.

Everything else is normal. (2/10) (7/10)

Day 67 Fri 25th March 2011: Low mood again since I woke up. Spent most the day in my room reading.

UC still at bay and everything is normal. I say normal, it isn’t quite 100%, I still have the tiredness you get with UC and the occasional cramp and pain. (2/10) (7/10)

Day 68 Sat 26th March 2011: UC still at bay, toilet visit fine.

I’ve been doing some exercises for my back and warming up the rest of my body for when I start proper exercise. You know you’re fat and out-of-shape when you have to do warm-up exercises for your warm-up exercises, a week in advance!

Mood still low. (2/10) (8/10)

Day 69 Sun 27th March 2011: Despite the fact I went to bed early, 11:30pm, and woke up at 9am, I still feel tired! I think the tiredness is more the result of low-mood than UC. Still feel low.

Toilet visit was normal! Prednisolone do work for me! Which is a good thing, so good to have normal toilet visits! (2/10) (7/10)

Day 70 Mon 28th March 2011: Woke up late after going to bed late, I’m not 100% sure but I think my tiredness is mostly due to low-mood.

Toilet visit was fine!

Mood still low.

The green readings will remain 2/10 untill I can be sure the UC is not causing the tiredness. (2/10) (6/10)

Posted in Health and wellness, Ulcerative Colitis Diary | Tagged: , , , , , , , | 10 Comments »

Ulcerative Colitis Diary: Week Nine On Prednisolone

Posted by DeadAnarchistPhil on March 22, 2011

Green = How well I feel 1 being the best and 10 being the worse.

Blue = Depression. Again, on a scale as above.

Treatment for: Ulcerative Colitis.

Medication, Direction and Course as follows:

Prednisolone : Take four 5mg Tablets daily for four weeks [Now six weeks], then cut down by one tablet a week each week over the next four [Now three] weeks.

Day 57 Tue 15th March 2011: Woke up at 11am, not been to the toilet yet and no twinges from the beef I ate yesterday. But still, I’m not going to eat any of the foods that may cause a  flare-up untill I’m fully off the Prednisolone.

Went to the toilet, normal! Down to one tab a day from today, wish I remembered that this morning when I took two! Oh well. (2/10) (6/10)

Day 58 Wed 16th March 2011: Got up late (10:30am), didn’t sleep well. Went to the toilet and it’s still normal. No cramps or pains. Did some cleaning and work in the Bathroom, felt OK, besides the fumes from the bleach and the stretching!

Went to bed at 2am, couldn’t sleep or get comfortable. Got up and did some writing then went back to bed at 5am. (2/10) (5/10)

Day 59 Thu 17th March 2011: Got up late, about 12:10pm, I didn’t sleep well again! I don’t think the bleach fumes helped, it’s given me a bad chest! I’ll buy a mask for when I start painting! (2/10) (5/10)

Day 60 Fri 18th March 2011: Didn’t go to the toilet yesterday, so I’ll go some time today. So far, no bloating or cramps.

Went to the toilet, it was normal. It’s so good to feel well again, I mean, I’m not perfect but I feel a lot better. I still feel tired in the day like I used to, but it’s better. Dare I say it… I feel ‘Normal’! (2/10) (4/10)

Day 61 Sat 19th March 2011: Woke up late, about 11:15am, with a bad back! It must’ve been the cleaning and stretching to get the old paint off the ceiling in the toilet on Wed! I still have it now at 5:20pm.

Went to the toilet, it was normal. But I was tired before that, I fell asleep for an hour and half. Though the UC is sort of at bay, I still have the tiredness that comes with it. (2/10) (4/10)

Day 62 Sun 20th March 2011: My back is a little bit better this morning, at least I’m not walking around like an old man!

Went to the toilet, ’twas normal!

I’m feeling a little drop in mood today.

HOLY FUCKING SHIT! I went to bed early, and my back suddenly got extremely worse when I got up again to get comfortable! It was as painful as 2009 when I last had it this bad! Because of this I stayed up really late and my sleeping pattern is well and truly out of the window! Feeling pretty shitty right now. The pain killers (Co-dydramol) don’t even work! (2/10) (5/10)

Day 63 Mon 21st March 2011: Woke up at 12:15pm! I wasn’t up long before I had one of my downturns in mood. When I get them I just don’t want to be seen by, spoken to, looked at  or be near anyone. I also don’t feel like doing anything either. So I went to my room and fell asleep for a few hours, I felt a little better afterwards, though I’m still feeling it.

Went to the toilet, was normal! Just had a shower and preparing for a boring night in front of the TV or messing on about on the PC. (2/10) (6/10)

Posted in Health and wellness, Ulcerative Colitis Diary | Tagged: , , , , , , , | 4 Comments »

Ulcerative Colitis Diary: Week Eight On Prednisolone

Posted by DeadAnarchistPhil on March 15, 2011

Green = How well I feel 1 being the best and 10 being the worse.

Blue = Depression. Again, on a scale as above.

Treatment for: Ulcerative Colitis.

Medication, Direction and Course as follows:

Prednisolone : Take four 5mg Tablets daily for four weeks [Now six weeks], then cut down by one tablet a week each week over the next four [Now three] weeks.

Day 50 Tue 8th March 2011: Ccmpletely forgot to do it this day, but on the whole things were normal. (4/10)(6/10)

Day 51 Wed 9th March 2011: Had to strain when I was on the toilet, not had to do that for a long time! But still, the best it’s been for a while. OCT/D and low mood still there. (3/10)(7/10)

Day 52 Thu 10th March 2011: (Forgot this day) ()()

Day 53 Fri 11th March 2011: Went twice today, no change in it though, it’s still good. Had some cramps though. OCD still there but not so bad. (3/10) (6/10)

Day 54 Sat 12th March 2011: Been to the toilet, it was normal, well 99% normal, it aint perfect but it’s better than how it was. Only went once, but have cramps and may have to go again.) (3/10)(6/10)

Day 55 Sun 13th March 2011: Woke up late, but my sleeping pattern is staying consistent for the time being. I didn’t go to the toilet again yesterday, not been today either and it’s 2:22am! Only minor cramps, nothing bad really. My scalp is still itchy but not as a much as before. OCD not that bad but still feel low.

Went to the toilet, I have to say… you know you have UC when you’re happy to see a normal bowel movement! It’s so good to be in the toilet for only 15 minutes at the most instead of three-quarters of an hour at the least! (3/10)(6/10)

Day 56 Mon 14th March 2011: Not much trouble today, haven’t been to the toilet yet, have no cramps but I feel tired. Then again, I feel tired every day.

Fell asleep for two hours because I was tired.  OCD and anxiety aint been that bad. Went to the toilet and twas normal.

 So today I tried beef for the first time in months! I had a beef curry, to see if beef affects me. Though I don’t think anything will show while I’m still on the prednisolone. I think I was a little premature in trying this today, I will leave the foods alone untill I am off the steroids, that way I can tell if something really sets UC off without the steroids dampening things. (2/10 )(5/10)

Posted in Health and wellness, Ulcerative Colitis Diary | Tagged: , , , , , | 8 Comments »

Ulcerative Colitis Diary: Week Seven On Prednisolone

Posted by DeadAnarchistPhil on March 8, 2011

 

                                                                                    WEEK SEVEN

Green = How well I feel 1 being the best and 10 being the worse.

Blue = Depression. Again, on a scale as above.

Treatment for: Ulcerative Colitis.

Medication, Direction and Course as follows:

Prednisolone : Take four 5mg Tablets daily for four weeks [Now six weeks], then cut down by one tablet a week each week over the next four [Now three] weeks.

Day 43 Tue 1st March 2011: Even though I went to bed early last night I couldn’t sleep, had a rapid heart beat and my head and neck were itching because of the acne. So I was awake untill gone 2:30AM and woke up around 9:30AM. Went to the toilet not long after I got up, things seem the same as yesterday, also no blood. OCD and anxiety doesn’t seem so bad today. (5/10) (6/10)

Day 44 Wed 2nd March 2011: Woke up at 9:10AM, felt bloated. Had some breakfast and then later I had dinner. After that I went to clean the Bathroom. Of course, before I even started I had to use the toilet. So, while I was cleaning I was on and off the toilet! Three times if I remember correctly. Makes me wonder what it’d be like if I did exercise. Motion was same as yesterday, with no blood. OCD wasn’t as bad today, though I did have a rapid heartbeat for a time. (5/10) (6/10)

Day 45 Thu 3rd March 2011: Woke up, felt bloated and not been to the toilet today at all. OCD been up again, but as bad as what it has been. (6/10) (5/10)

Day 46 Friday 4th March 2011: Woke up late, felt tired and bloated and went to the toilet as soon as I got up. Same as yesterday really. OCD still a pain. I had such a headache I had to lay down for a while, I felt so tired and fucked off that I fell to sleep for two and half hours. The acne on my upper neck and scalp has gotten worse, but isn’t as bad on my neck or chest! I will be taking to the dermatologist on Monday about it. (5/10) (6/10)

Day 47 Sat 5th March 2011: Because I fell asleep yesterday afternoon I had trouble sleeping. I went to bed at 1:30am but ended up with a headache, rapid heartbeat and the Obsessive thinking becoming worse again, so I got back up and took some pain killers. I was awake untill 5:30am and got up at 11am today. So far, no bloating and no pain yet.

Went to the toilet in late afternoon, only went twice, but was so tired after it (was tired before I went though) and ended up going to sleep for an hour or so. No blood and same as last time. OCD still a pain. (4/10) (6/10)

Day 48 Sun 6th March 2011: Woke up late 10:30am, had breakfast and ended up going for a lay down at 2:30pm and fell asleep untill 5pm. I’m at that point again where I don’t want to be seen, spoken to, have to think or bother with anything. I’ve been like this before but I’m not sure if it’s the lowering of the prednisolone dose or caused by the increased OCD. Anyway, not been to the toilet yet, if I don’t go today then I wont be able to make it to the Doctors tomorrow, because I don’t want to take the chance having not gone the day or night before!

I went to the toilet, it was better formed than it has been for a while, there was no blood and I wasn’t on there for more than 10 minutes! That is progress! Just a matter of it staying that way! (4/10) (7/10)

Day 49 Mon 7th March 2011: Yesterday I went to bed around 1:30am, but didn’t get to sleep untill an hour later. I woke up early, 7:30am, and managed to get to the Doctors without much trouble. He gave me Zineryt for the acne, something I’ve had before that worked, see how it goes. The Doc said I should stay on at least one 5mg tablet (I’m down to two a day tomorrow 8th March 2011) untill I see the UC Prof in April! I was meant to see him in March but owning to “clinical availability” I can’t see him. And, from what the Doc said I wont be seeing him when I do go! Apparently a lot of the jobs the Profs and Docs had are now being managed by nurses. They can prescribe and advise on meds. Obviously this is part of the NHS cost cutting! Some profs and docs were paid too much to keep them in the NHS, but now… I think we can all see what’s going to happen! Anyway, OCT/D (Obsessive Compulsive Thinking/Disorder. I think OCT fits me better) is still strong and I felt really bad over the weekend, but not feel that bad today, though it is only 4:20pm. (4/10) (6/10)

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UC Diary: I’m So Out Of Shape!

Posted by DeadAnarchistPhil on March 7, 2011

While I was cleaning the bathroom last week I noticed how easily I got a little out of breath and start sweating, I mean, even more than I used to, and it wasn’t really hard work! Just circular motions with the sponge while applying pressure. I did the same thing with the mop, which I found caused more sweating and increased heart beat than it should. 

This wasn’t the only time I noticed this, I noticed just running up the stairs and putting my sister’s Rat cage together, but I didn’t think it was that bad.

I went to the Doctors today, walking briskly, I wasn’t that out of breath, but it was harder work than it used to be, I could feel the difference, there was more stress on my heart., I had to take more air in. By the time I got to the Doctors I had to sit down and take my inhalers, even though I was sat down I was still finding it hard to breath a little. During the walk my saliva got so thick, like it does when you first starting exercise after a long break. I’m not sure why that happens! I’ve read everything from increased air intake to not hydrating properly. If anyone can tell me why that happens I’ll be grateful!

I’ve also been in the garden today digging, unfortunately it was a hole for one of Cats, she’s not been well for two months or so and she’s had to be put down. I think that is better than not being able to eat, drink and losing the use of your legs! So I dug the hole in preparation for her coming home, a little sad but it had to be done. Anyway, I noticed I was knackered just diggining a hole! And I never used to get that knackered just digging!

After discussing my medication with the Doc I asked him to weigh me. I already knew I was 23st as I have home scales, I just wanted to be tested on a more accurate pair, which these ones were! Low and behold I am 23st 6! I can’t say it shocked me but the extra weight and my inactivity is having an effect on me!

I know, I need to diet! Thing is, if I start doing brisk walking every other day I’m running the risk of setting the UC off or making it worse! A diet by itself wont be much help either because I’ll not have a lot of choice of food as I still can’t eat many. There’s also the fact a bland diet would make me so damn miserable as food is the thing I enjoy most, even in its limited to certain kinds.

ever since I got the UC I’ve been doing exercise on and off and I’ve never been able to keep it constant! I used to love exercising, I used to do it six days week! Mon, Wed, Fri I would do cardio on the treadmill or bike. Tues, Thu and Sat  I’d lift some weights. It was hard doing it now and again, not just because of the UC but the strong mindset you need to keep at it when you just don’t feel like doing it, I find that very hard to do.

I’m not going to whine anymore, I just wanted to document this. So I’m going to have to wait untill I make some good progress on my Prednisolone medication, which is looking like late May or early June.

I was going to do a blog on Glam, but I decided against it, I’m not sure many people want to read about a Cat. But she was my Cat, that I rescued back in 1994 from a building site. I’m glad I did and gave her a longer life than she ever would’ve had out-doors. She brought happiness to our lives, as well as three kittens, two of which we kept! She especially brought happiness to my mother whose own cat had died a few weeks after I brought Glam in. If there is some kind of afterlife after anything dies, then I hope Glam’s sat up there on her own ironing board, yes she loved to sleep on them, aswell as any low down cardboard boxes, plastic bags, dirty or clean washing and maybe on your head if it took her fancy! R.I.P Glam

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Ulcerative Colitis Diary: Week Six On Prednisolone

Posted by DeadAnarchistPhil on March 1, 2011

                             

                          WEEK SIX

Green = How well I feel 1 being the best and 10 being the worse.

Blue = Depression. Again, on a scale as above.

Treatment for: Ulcerative Colitis.

Medication, Direction and Course as follows:

Prednisolone : Take four 5mg Tablets daily for four weeks [Now six weeks], then cut down by one tablet a week each week over the next four [Now three] weeks.

Day 36 Tue 22nd Feb 2011: Can’t remember what time I woke up, but it was earlier than yesterday. Went to the toilet, it’s same as before more or less with no blood still. Wasn’t on there as long either. Though I think I may bleed again this week because my mood is so low today, it’s been dipping since last week. Getting to that point where I don’t want to be around anyone again. Didn’t really want to make this diary about anything else, but seeing as mood is connected to the UC and cycle of depression and UC, I will have to include it.

Had some tea, well… I say tea I mean 4 bags of Nik-Naks and some Piri Piri Chicken, which wasn’t that good! Now I have a headache and a rapid heartbeat. (4/10) (8/10)

Day 37 Wed 23rd Feb 2011: Didn’t get to sleep ’till gone 12am yesterday. Got up late, not been to the toilet today at all, which means I’m getting back to the point I was at before things messed up. No pain, no discomfort So far.

I just accidentally posted this blog because I wasn’t looking at what I was doing!! (>_<)! Duh! (4/10) (8/10)

Day 38 Thu 24th Feb 2011: Got up early, had breakfast, didn’t go to the toilet untill mid-afternoon. When I did, I was on there for an hour! About as formed as yesterday, with a little bit of blood. No current pains or cramps, but OCD and Anxiety still a shit!

Finding it hard to motivate myself to do things, don’t want to think and can’t concentrate fully. I feel annoyed because of it. (4/10) (8/10)

Day 39 Fri 25th Feb 2011: Woke up late, about 9:20AM. I did want to get up at 8 or 8:30AM to keep my sleeping pattern normal. But with the New Laurel and Hardy show in every night in my house, plus them musical cats, I usually wake up more than I should do!

Anyway, haven’t been to the toilet today, which means things are settling again, but today hasn’t been without any discomfort. Woke up with pain in my abdomen.

Felt tired and pissed off most of the day, looking forward to a sleep. (5/10) (7/10)

Day 40 Sat 26th Feb 2011: Woke up late again today, went to the toilet when I got up, was less formed than usual but no blood. Also went four hours later, it was even less formed then, but still no blood. No pain or discomfort so far, but still have a lack of motivation.

Went to bed late and woke up at 1am, and slept untill 10:30AM. (4/10) (6/10)

Day 41 Sun 27th Feb 2011: Woke up late, not been to the toilet so far, no pain or discomfort.

Went to the toilet late in the evening, it’s gone backwards again, less formed and blood again. It’s not like it was before I started taking the Prednisolone, but it still isn’t good. Went three times and had discomfort with it afterwards. (5/10) (6/10)

Day 42 Mon 28th Feb 2011: Didn’t get to sleep untill gone 2:30AM and got up at 8:30AM. I’m tired but I do it to keep my sleeping pattern as normal as possible for when I start my Open Uni study. So far, no bad discomfort, but feel a little bloated. I start lowering the dose tomorrow to three tablets a day for a week and decrease by a tablet a week untill I’m off them. I assume then I’ll need a months break to let my body recover before starting a higher dose. Things haven’t gone to plan at all, and looks like I wont be making any good progress untill mid-May or even June. 

Well, it’s 10:55pm, I’ve felt a little bloated all day, but not been to the toilet. Made an appointment to see the Doc next week about sorting out another course of the Prednisolone. I’m thinking I’ll have to take a month off them. The obsessive thinking is getting really annoying, I’m starting to thinking about people, situations and things all the time, I mean, like all the time! It’s starting to engulf my whole day, I’ve been here before but not for a while. Needless to say it’s winding me up. Anyway, going to set this to publish and then am off to bed! (5/10) (7/10)

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